What is Rett Syndrome?
Rett Syndrome is a rare, non-inherited genetic neurological disorder that occurs in mainly girls. Girls with Rett Syndrome develop normally and show no signs until 6 to 18 months of age. Rett Syndrome does affect boys, as they have one X chromosome, but due to the mutation being only on the x chromosome there are devastating affects. Rett Syndrome affects girls differently due to the fact that they have 2 x chromosomes. Rett Syndrome affects 1 in every 10,000 girls and there is a girl born with Rett Syndrome every 90 minutes. Each girl has a classic hand movement: hand mouthing, constant clapping or hand wringing. 99% of girls are non-verbal, but have shown to be very intelligent once taught their own form of communication.
We are a non-profit organization, Pretty Halos, which helps all Rett Families with additional financial support that insurance simply doesn't cover. Raising a special needs child is very expensive and with most things being trial and error, financial support should be the least of our worries. Our family has turned heartache into something powerful, not only for our daughter, but for all those who are affected by Rett Syndrome. As a mother to a little girl with Rett Syndrome, I've created Pretty Halos as a fun and beautiful way to help others in need and Grow Awareness for Rett Syndrome one Halo at a time.
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